A flexible model for patient engagement: Achieving quality outcomes and building a research agenda for head and neck cancer
Recommended Citation
Iwata AJ, Olden HA, Kippen KE, Swegal WC, Johnson CC, Chang SS. A flexible model for patient engagement: Achieving quality outcomes and building a research agenda for head and neck cancer. Head & neck 2019; .
Document Type
Article
Publication Date
1-8-2019
Publication Title
Head & neck
Abstract
BACKGROUND: This article describes the benefits of patient-driven research in the field of head and neck oncology, reviews lessons learned from establishing partnerships with patients and caregivers, and serves as a model for further patient-driven research endeavors.
METHODS: Head and neck cancer survivors underwent training including that of effective communication and the basics of research methodology. They then drove the agendas for monthly meetings that included a multidisciplinary team of providers, facilitated by a physician champion (S.S.C.).
RESULTS: The advisors reported concrete areas for improvement of the clinical flow, including the formation of a dental oncology clinic and a post-treatment survivorship clinic. They also refined research topics of interest, such as treatment regret. The advisors have also driven efforts to increase public awareness and have participated in cancer symposiums and local presentations.
CONCLUSION: Patient-driven research improves the relevance and implementation of head and neck oncology research and clinical processes.
PubMed ID
30620439
ePublication
ePub ahead of print
