Using action research and a community-academic partnership to understand clinical trial participation: a patient-centered perspective
Recommended Citation
Santarossa S, Baber M, Hussein J, Oley C, Slangerup K, Murphy D, and Kippen KE. Using action research and a community-academic partnership to understand clinical trial participation: a patient-centered perspective. Res Involv Engagem 2024; 10(1):61.
Document Type
Article
Publication Date
6-13-2024
Publication Title
Res Involv Engagem
Abstract
BACKGROUND: Clinical trials that are patient-centered appear to be more successful (e.g., clinical outcomes, improved communication, mutual empowerment, changed attitudes), thus, action research may be a field of importance. The current study explores the Formation and Execution of Activities phases of a community-academic partnership (CAP).
METHODS: Members consisted of industry stakeholders, a healthcare/academic institution, and patients/families with lived experiences as cancer survivors and/or caregivers. Retrospectively, CAP members described the facilitating and/or hindering factors present in the partnership development. A document review process was used. Field notes from three CAP meetings, which focused on understanding clinical trial participation, were analyzed using a thematic approach.
RESULTS: Seven facilitating and three hindering factors were present. Interpersonal (vs. operational) processes were referenced as influential facilitating factors more often. Themes that emerged included 'trials as a treatment option', 'leaving a legacy', and 'timing is critical.'
CONCLUSION: This study provides a patient-centered perspective on barriers/challenges of clinical trial participation and how to improve future perceptions.
PubMed ID
38872195
Volume
10
Issue
1
First Page
61
Last Page
61
