Findings and recommendations from the organ transplant caregiver initiative: Moving clinical care and research forward
Recommended Citation
Jesse MT, Hansen B, Bruschwein H, Chen G, Nonterah C, Peipert JD, Dew MA, Thomas C, Ortega AD, Balliet W, Ladin K, Lerret S, Yaldo A, Coco T, and Mallea J. Findings and recommendations from the organ transplant caregiver initiative: Moving clinical care and research forward. Am J Transplant 2021; 21(3):950-957.
Document Type
Article
Publication Date
3-1-2021
Publication Title
American journal of transplantation
Abstract
Lay-caregivers are essential to the continuum of care in adult organ transplantation. However, we have a limited understanding of the experiences, exigencies, and outcomes associated with lay-caregiving for organ transplant patients. While much discussion and debate has focused on caregiver requirements in relation to transplant candidate selection, little focus has been given to understanding the needs of caregivers themselves. In response to this, the Organ Transplant Caregiver Initiative was created, and a meeting was held during October 6-7, 2019. Transplant healthcare professionals, researchers, and lay-caregivers discussed the experiences, educational needs, existing research, and research recommendations to improve the experience of lay-caregivers for adult organ transplant patients. In this report, we summarize the Organ Transplant Caregiver Initiative and meeting findings, providing a preliminary action plan to improve education, research, and advocacy for organ transplant caregivers.
PubMed ID
32946643
Volume
21
Issue
3
First Page
950
Last Page
957
