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Description

This project involves long-, mid-, and short-term objectives to address gaps in the science of engagement in research focused on development and/or assessment of instruments that measure meaningful patient engagement in research (PEIR). PEIR involves patients undertaking roles beyond those of traditional study participants by including them throughout the entire research process. Long-term objective is to develop a national model for measuring meaningful PEIR that is adaptable for all settings and catchment areas. Mid-term objective is to create the sustained engagement of a diverse group of stakeholders in the design, implementation, evaluation, and dissemination of Science of Engagement research. How to accomplish short-term objectives of our project through the following Specific Aims: Aim 1. To establish an ongoing diverse consultative group (i.e., Science of EngAgement Team SEAT) comprising of Patient Advisors, Patient Advisor Liaisons (PAL), researchers, and other stakeholders; Aim 2. To evaluate the psychometric properties of PEIRS in a new population of respondents (i.e., diverse PAs) Patient Advisors meaningfully engaged as researcher partners.

Publication Date

10-26-2023

City

Detroit, Michigan

Keywords

patient-centered care, patient experience, patient advisors, patient advisory councils

Disciplines

Health Services Research

PEIR IDEAS (Patients Engaged in Research - Inclusion, Diversity, Equity, Acceptance, and Safety)

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