For the past 7 years, the Henry Ford Health Patient Engaged Research Center (PERC) hosts an Annual Patient Advisor Retreat that is intended to bring Patient Advisors and Henry Ford Health staff together to celebrate accomplishments as well as provide advisors with meaningful speakers that remind them why their role is so important. The retreat features Henry Ford Health senior leaders, skill building, informative speakers, networking/mingling, food, opportunities to learn about other councils and committees, and more.
This page contains citations, presentation materials, and other information available from PERC and its annual Patient Advisor Retreats.
7th Annual Patient Advisor Retreat Thursday, October 26th from 9:00am-2:30pm HFH Corporate Office, 1 Ford Place, Detroit, Michigan
For more information on PERC, visit its page here.
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Macomb Care Experience Patient and Family Advisory Council - A Year of Change
Maureen G. Bennett, Brooke Shankin, Kristi Theol, and Austin LaSota
Vision of the Committee: To create partnerships among health care practitioners, patients and families that will lead to the best outcomes and enhance the quality and safety of our health care. Objective/Purpose: Provide advice, consultation, evaluation and recommendations regarding programs, educational efforts, selected research activities and operational initiatives that affect patients and families. Provide feedback and suggestions to enhance the patient/family experience at Henry Ford Macomb Hospital. Promote respectful,... Read More
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West Bloomfield Care Experience Patient and Family Advisory Council: A Year of Change
Maureen G. Bennett, Luke Sparkman, Ioana Harland, and Colleen Berson
Purpose: To enable Henry Ford Health System to provide the highest standard of safe, comprehensive and compassionate healthcare while integrating the voice of the patients and families in policy and program decision making. Scope: Providing Patient-Centered Care (Nothing about me, without me) is the best approach to improving outcomes and providing value to each patient. The Patient Advisory Council members are involved in some or all ofthe following functions... Read More
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Experienced Transformation Patient & Family Advisory Council
John Bollinger, Thomas Eisenmann, Missy Ewald, Julie Goldstein-Dunn, Ally Hunter, Jennifer Kindseth, Shivani Mehta, Vanessa Mona, Stephanie Ryan, Courtney Stevens, and Rajitha Viswaraju
Providing Patient-Centered Care (Nothing about me without me) is the best approach to improving outcomes and providing value to each patient. This council works on initiatives and process improvement around pre-visit, onsite visit, and post-visit communication and delivery. Additional Henry Ford Health priorities are to leverage existing or new digital solutions that facilitate patient access, strengthen existing referral channels and growing new ones with potential future partners, assist patients... Read More
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Improving Research is a Multipronged Collaborative Approach Reliant on "Expert" Humility and Respect
Philip Cheng, Andrew Bossick, and Ashley B. Redding
Our project goal is to bring together Henry Ford health sciences researchers and community members to promote the engagement of diverse patient perspectives. This poster highlights current initiatives pertaining to the integration of diverse perspectives into the research process to enhance our science at the group, system, and NIH level.
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All of Us Research Program PFAC
Janine Hussein, Tiffany S. Lee, Cathy Peltz, Christine C. Johnson, and Brian Ahmedani
The goal of the All of Us Research Program (AoURP) is to help improve the future of health by accelerating health research and medical breakthroughs. The AoURPis part of the National Institutes of Health (NIH) Precision Medicine Initiative and seeks to help researchers understand more about why people get sick or stay healthy. The All of Us Research Program has established nationwide partnerships to build a research cohort to... Read More
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HFWH PFAC of Influence
Julie Johns and John Chandler II
Our team is engaged with leaders from multidisciplinary departments that are working on improvement projects, ranging from marketing and messaging materials, physical plant changes, hardwiring best practices in communication and patient engagement. Our goal is to assist department leaders by improving and enhancing communication between patients, families and staff and always keeping the patient voice present on behalf of our community.
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STEPS PFAC: Seniors Using Technology to Engage in Pain Self-Management
Lisa D. Landvogt, Leslie Grijalva, Tracie Mason, Jessica Judson, Courtney Latimer, Jaye Clement, Kimberlydawn Widsom, Tashfia Jilu, Sara Nguyen, Rebecca Lindsay, and Mary Javenic
STEPS stands for Seniors using Technology to Engage in Pain Self-management. We are testing to see if a pain self-management program can help people live better with chronic pain and reduce pain’s impact on their lives. Participants will: Complete three 60-minute telephone surveys Baseline, 2-month follow-up, and 12-month follow-up. Be randomly placed into one of two groups (50/50 chance): Intervention Group: A 7-week program with web-based videos and weekly... Read More
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Patient Involvement and Communication Council
Angela Murphy, Laura Gooseberry, Becca Austin, Rob Behrendt, and Lara Miskevich
Patient-Centered Care (nothing about me without me) is the best approach to improve outcomes and provide value to each patient. The Council is involved in the following: Act as champions of patient experience andbring ideas, thoughts, and opinions on various topics and processes. Review patient and family communications to ensure engagement in health care services. Provide feedback regarding communication gaps between patients and providers. Revise and improve materials to... Read More
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Shift Worker Patient & Family Advisor Council (PFAC)
Grace Paniccia, Jonny Russell, Salma Habash, and Philip Cheng
The Shift Worker Patient and Family Advisory Council (SHIFT PFAC) is an active patient engagement program aimed at improving the lives of night shift workers through their involvement and influence in our studies. We are proud to work with night shift workers as they are a group often overlooked in healthcare initiatives. We aim to work with the SHIFT PFAC to improve not only the physical health, but also... Read More
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BuMP: Burnout Mitigation in Physician Trainees
Jacqueline Pflaum-Carlson, Sara Santarossa, Lisa McLean, Julie A. Hamilton, Dana Murphy, and Ashley B. Redding
Physician burnout affects healthcare organizations at every level and has been associated with higher self-reported errors, increased turnover, and has a negative impact on patient care; it is estimated that tens of thousands of Americans die each year as a result ofpreventable medical errors. This project seeks to reduce the symptoms of physician burnout by exploring Acceptance Commitment Therapy (ACT) compared to Body Mapping as effective interventions in preventing... Read More
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PEIR IDEAS (Patients Engaged in Research - Inclusion, Diversity, Equity, Acceptance, and Safety)
Sara Santarossa, Andrew Bossick, Karen Kippen, Christine L. M Joseph, Leah M. Copeland, Dana Murphy, Ashley Redding, Angela Murphy, and Maureen G. Bennett
This project involves long-, mid-, and short-term objectives to address gaps in the science of engagement in research focused on development and/or assessment of instruments that measure meaningful patient engagement in research (PEIR). PEIR involves patients undertaking roles beyond those of traditional study participants by including them throughout the entire research process. Long-term objective is to develop a national model for measuring meaningful PEIR that is adaptable for all... Read More
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Using Storytelling to Share Lived Experiences with MAternal MentAL Health (MAMA)
Sara Santarossa, Amy Loree, Courtney Latimer, Wendy Corriveau, Sara Mertz, Hailey Maddox, Leah M. Copeland, Dana Murphy, and Ashley B. Redding
Mental health conditions are a top medical complication of pregnancy and childbirth and are associated with a range of adverse maternal and child outcomes. Approximately 1 in 7 to 1 in 4 birthing people experience symptoms of a mental health condition during pregnancy or postpartum, yet few are diagnosed or treated. There remain critical knowledge gaps and significant challenges to adequately addressing maternal mental health. Project aims to use... Read More
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The Patient Perspective on Covid-19 Restrictions Lifting: A Descriptive Study of Resuming In-Person Meetings
Sara Santarossa, Ashley Rapp, Dana Murphy, and Janine Hussein
Henry Ford’s Patient Engaged Research Center (PERC): Our mission is to translate the patient voice into evidence-based care through community engagement and world-class research methods. PERC Patient Advisor Program: PERC relies on active participation of its Patient Advisors (PAs) in the Patient Advisor Program (the Program). PAs contribute their patient and/or caregiver experience and feedback to HFH projects and initiatives to ensure care is patient-centered. COVID-19: Due to the... Read More
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Our Contributions to the Hermelin Brain Tumor Center (HBTC)
Megan Sauer, Marc Betman, Ron Leach, Mike Coughlin, Jeni Barry, Dominik Mackowski, Lisa Scarpace, and Nestelynn Gay
The Hermelin Brain Tumor Center Patient and Family Advisory Council is comprised of patients and care partners who have generously agreed to come together to share their experiences and ideas. Mission Statement: Our goal is to drive patient and caregiver education, innovation, research, and success to continue to be a center of excellence. We aim to amplify the strengths of the Hermelin Brain Tumor Center by sharing our combined... Read More
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Pursuing Equity in Patient Care (PEPC)
Linda Stechison, Jaquetta Hinton, Marla R. Gorosh, and Kimberleydawn Wisdom
Participating on the PEPC Committee is an opportunity to observe the exchange of information with leaders who are in positions to act on Quality Improvement (QI) projects/clinical research(CR) results to expand scope, encourage spread, and share resources. As Patient Advisors we use the lenses of our personal identities, work history, and life experiences to provide perspective for the patients’ voices. We see the barriers of the patient-clinician relationship that... Read More
