"54772 Pigmentary disorders, prevalence, impact on quality of life and " by Delphine Kerob, Thierry Passeron et al.
 

54772 Pigmentary disorders, prevalence, impact on quality of life and social stigmatization: Results of the first large international survey

Document Type

Conference Proceeding

Publication Date

9-1-2024

Publication Title

J Am Acad Dermatol

Abstract

Introduction: Pigmentary disorders (PD) are frequent dermatological conditions, but little is known on their real-world prevalence and impact. This first worldwide survey evaluated the self-reported prevalence of PD such as Melasma, Post-inflammatory Hyperpigmentation (PIH), Solar Lentigo, Vitiligo, Peri-Orbital Hyperpigmentation (POH) and Axillary Hyperpigmentation (AH), their impact on quality of life (QoL) and stigmatization. Methods: This survey (N= 48,000) was conducted in 34 countries from all continents from December 2022-February 2023. The online auto-administered questionnaire covered demographics, phototype, self-reported pigmentation condition based on a descriptive text and image of each condition, its impact on QOL, stigmatization, and sun protection behavior. Results: 50% of the population (average age : 44 years) reported having at least one PD (solar lentigo 27%, AH 18%, PIH 15%, POH 15%, melasma 11% and vitiligo 8%), with more women affected (59%). Previous dermatological diagnosis was reported in 36% of them, while 19% made their own diagnosis thanks to the questionnaire. All PD significantly impact QoL and lead to stigmatization. DLQI score was >10/30 for 28% of them, and 44% of patients with a PD have concealed/hidden the visible parts of their affected skin. Although sun exposure worsens the pigmentation, respondents reported a low-level of protection against the sun: only 38% protect their skin all year long, and only 38% consider that sun exposure is deleterious to their condition. Conclusions: This first large international survey on PD shows the high prevalence of PD worldwide, their significant impact on QoL and stigmatization, highlighting the need for education on photoprotection.

Volume

91

Issue

3

First Page

AB280

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