61479 Pigmentary disorders, prevalence, impact on quality of life, social stigmatization: results of the first large international survey in North America (I'SPOT study)

Document Type

Conference Proceeding

Publication Date

9-1-2025

Publication Title

J Am Acad Dermatol

Abstract

Introduction and objectives: Little is known about the real-world prevalence and impact of pigmentary disorders (PD). This worldwide (WW) survey evaluated the prevalence of PD, its impact on quality of life (QOL) and stigmatization in 34 countries comparing North American (NA) results to those WW. Materials and method: A survey was conducted in 48000 subjects in 34 countries WW. The questionnaire covered demographics, self-reported pigmentation condition, impact on QOL, stigmatization, and sun protection behavior. Results: Among 4 000 NA, 43% reported at least one PD (vs 50% WW). Overall, NA reported less PD compared to WW. NA participants were mostly women (57%) with an average age of 47.8 years. Diagnosis by the dermatologist was 31% (vs 36% WW), whereas 26% (vs 19% WW) made their own diagnosis based on the questionnaire. DLQI was >10/30 for 17% of them vs 28% WW ranging from 6% for SL to 38% for vitiligo. 37% NA hide the visible parts of their affected skin (vs 45% WW), 23% avoid people (vs 32% WW), 22% refuse direct contact (vs 30% WW), and 16% feel they brig shame to their family relatives (vs 19% WW). 39% protect their skin all year (vs 38% WW). 83% regret not having better protected their skin from the sun in the past (vs 80% WW). Conclusions: Prevalence of PD in NA Is high but less frequent compared to that WW. Photoprotection behaviors and knowledge in NA and WW remain insufficient, highlighting the need for a more efficient photoprotection education.

Volume

93

First Page

AB271

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