Co-Development and Co-Validation of the Patient Engagement in Research Scale Enhanced by Inclusion, Diversity, Equity, Acceptance and Safety

Authors

Ashley B. Redding, Henry Ford HealthFollow
Chi Chang, Henry Ford Health
Carl P. Wilson, Henry Ford HealthFollow
Leah M. Copeland, Henry Ford HealthFollow
Dana Murphy, Henry Ford HealthFollow
Sara Santarossa, Henry Ford HealthFollow

Files

Description

Purpose: The PEIR-IDEAS project aimed to adapt and validate the Patient Engagement in Research Scale (PEIRS) in a diverse population of patients, centering inclusion, diversity, equity, acceptance, and safety (IDEAS). The Science of EngAgement Team (SEAT), which was comprised of diverse patient partners, researchers, and community members, were deeply embedded in every phase of the research process. Sample: Both active and inactive Patient Advisors from Henry Ford Health's Patient Engaged Research Center were invited to participate (n=574). Patient Advisors represent diverse backgrounds including age, race, education, health condition, and represent 182 zip codes in 17 counties in Michigan. Ultimately, the validation included data from 257 Patient Advisors.

Publication Date

11-12-2025

City

Detroit, MI

Recommended Citation

Redding, Ashley B.; Chang, Chi; Wilson, Carl P.; Copeland, Leah M.; Murphy, Dana; and Santarossa, Sara, "Co-Development and Co-Validation of the Patient Engagement in Research Scale Enhanced by Inclusion, Diversity, Equity, Acceptance and Safety" (2025). 2025 Patient Advisor Retreat. 19.
https://scholarlycommons.henryford.com/perc2025/19