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Pain Management for Older Adults: The STEPS Patient and Family Advisory Council
Mike Anderson, Leslie Grijalva, Courtney Latimer, Jaye Clement, and Kimberlydawn Wisdom
STEPS stands for Seniors using Technology to Engage in Pain Self-management. It is a 5-year randomized controlled trial funded by the National Institute on Aging (NIA; R01AG071511). Purpose: Enroll 414 eligible study participants to test if the STEPS chronic pain self-management intervention can help adults (50+) live better with chronic pain. Participants will: Complete three 60-minute telephone surveys – Baseline, 2-month, and 12-month – Be randomly placed into one... Read More
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Experience Transformation Patient & Family Advisory Council
John Bollinger, Jessica M. Clarey, Missy Ewald, and Julie Goldstein-Dunn
The goal of this council is to collect insights and test new functionality to ensure Henry Ford Health can deliver consistent, easy, accessible, and convenient experiences that delight our patients and members unexpectedly. With the help of this council, we are: Redesigning and standardizing access points in ways we have not thought about in the past; Creating barrier-free access for our patients; Empowering team members to do their best,... Read More
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Exploring the Use of Prenatal Yoga to Prevent Postpartum Depression (PRY-D)
Mia L. Boulay, Erin N. Haley, Celeste Pappas, Sara Santarossa, Amy M. Loree, Laurel Hicks, Jordan M. Braciszewski, Lisa R. Miller-Matero, and Maya Zreik
Postpartum depression (PPD) affects ~13% of birthing people. Those with a history of depression have a 20-fold increased risk of developing PPD. Notable barriers to engaging in treatment for PPD exist, including limited awareness of PPD, logistical (e.g., time, transportation) and financial considerations, and stigma. Prior literature suggests that participating in yoga during the perinatal period may have important mental health benefits; however, prenatal yoga has not been examined... Read More
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Henry Ford Jackson Hospital Patient and Family Advisory Council
Joe Cafferty and Amy Sayles
Mission: Impact the delivery of healthcare at Henry Ford Jackson Health by advocating for safe and compassionate care for every member of our diverse community. Purpose: Learn about the services, operations and challenges of Henry Ford Jackson; Health to be able to provide the most relevant and useful insights; Act as ambassadors in the community for Henry Ford Jackson Health; Provide the patient, family and community voice to leaders... Read More
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Henry Ford Macomb Hospital PFAC
Joe Cafferty, Brooke Shankin, Jon Mayle, and Lora S. Michael
Vision of the Committee: To create partnerships among health care practitioners, patients and families that will lead to the best outcomes and enhance the quality and safety of our health care. Objective/Purpose: Provide advice, consultation, evaluation and recommendations regarding programs, educational efforts, selected research activities and operational initiatives that affect patients and families; Provide feedback and suggestions to enhance the patient/family experience at Henry Ford Macomb Hospital; Promote respectful,... Read More
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HFWH PFAC of Influence
John Chandler, Marty Marcero, Jennifer L. Altherr, and Jennifer L. Manciel
Our group is engaged with leaders from multidisciplinary departments that are working on improvement projects, ranging from marketing and messaging materials, physical plant changes, hardwiring best practices in communication and patient engagement. Our goal is to assist department leaders by improving and enhancing communication between patients, families and staff, always keeping the patient’s voice present on behalf of our community.
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Centering Patient Voices in Digital Health Innovation: Promoting Youth HPV Vaccination and Cancer Prevention
Angela Chen
My research brings together youth, parents, and other key stakeholders to co-create culturally responsive digital tools that promote vaccination and healthy behaviors. Our goal is to design research with participants—not on them—through storytelling, video games, and participatory media that reflect their lived experiences. Patient and community engagement drives every phase, from concept to evaluation.
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Enhancing Vanguard Research Study with Patient Engaged Research Advisors
Christine Chyu, Punith Shetty, Laura L. Susick, Michael Simoff, and Christine Neslund-Dudas
Cancer Screening Research Network (CSRN) launched the Vanguard study to evaluate a new multicancer detection (MCD) screening tool in nine health systems nationwide. HFH Patient Engaged Research Center (PERC) advisors played a vital role by reviewing and providing input to ensure Vanguard’s processes and materials are accessible and culturally appropriate for the community. PERC advisors helped address patient concerns about multi-cancer detection tests.
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ECHO-CANOE: Mom Opportunity Meetings
Molly Crimson, Audrey Urquhart, Misbah Chaudhry, Maya Zreik, Amy A. Eapen, Edward M. Zoratti, Christine C. Johnson, Sara Santarossa, and Jennifer K. Straughen
Purpose: The Environmental Influences on Child Health Outcomes (ECHO) study focuses on overall childhood health, while the Childhood Asthma and Neonatal Environment (CANOE) study focuses on asthma and allergies. Together, they form the ECHO-CANOE study. The ECHO-CANOE team partnered with Henry Ford Health’s Patient Engagement Research Center (PERC) to develop a small advisory group called CANOE Mom Opportunity Meetings (CANOE-MOM). This group provides personal feedback on the ECHO-CANOE study... Read More
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Engaging Community Members as Standardized Patients in Nursing Education
Lisa Daily and Jeanette Tanafranca
Michigan State University College of Nursing- Detroit (MSUCON) is located in the heart of the city and hosts a cohort of Accelerated Bachelors of Science in Nursing (ABSN) students, who complete their second degree in nursing in 15 months. This curriculum mirrors that of the East Lansing site. Simulation-based learning plays an important part of the nursing program. An integral part of these experiences are Standardized Patients (SPs). A... Read More
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Leveraging Academic and Patient Voices for the Development of a New Research Training Program
Eman A. Dannawey, Ashlee J. Vance, and Josh Winowiecki
NPATHS, A Nursing Program for Advancing Training in Health and Social Determinants, is an NIH funded R25 initiative, with the goal of bringing together nurses and allied health professionals to improve their understanding of social determinants of health (SDOH). Selected scholars participate in a 9-month long training program consisting of a 4 day in person intensive, monthly webinars, learning modules and a scholar summit where they will showcase their... Read More
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Hermelin Brain Tumor Center Patient and Family Advisory Council
Nestelynn Gay, Lisa Scarpace, Jeni Barry, and Marc Betman
The Hermelin Brain Tumor Center (HBTC) Patient and Family Advisory Council (PFAC) is comprised of patients and caregivers who have generously agreed to come together to share their experiences and ideas. Learn more about our council at https://www.henryford.com/services/brain-tumors/patient-stories/pfac. Mission Statement: Our goal is to drive patient and caregiver education, innovation, research, and success to continue to be a center of excellence. We aim to amplify the strengths of the... Read More
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Secret Shopper Program: Enhancing the Quality of Participant-Centered Recruitment in the All of Us Research Program
Janine Hussein, Cathy Peltz, Christine C. Johnson, Brian Ahmedani, and Sara Santarossa
Introduction: The All of Us Research Program (AoURP) implemented a Secret Shopper Program (SSP) to strengthen participant-centered recruitment. Patient and Family Advisory Council (PFAC) Advisors from Henry Ford Health’s Patient Engaged Research Center (PERC) were trained to simulate participant calls and assess the recruitment process. Methods: Using scripted personas, Secret Shoppers conducted mock calls and completed structured surveys in REDCap, along with narrative feedback capturing nuances such as tone,... Read More
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Community-Informed Education to Reduce Non-Emergent Pediatric ER Visits
Destiny D. Kanning
Families often turn to emergency departments for conditions that could be safely treated in primary or urgent care settings. This isn’t due to neglect, it’s the result of confusion, limited access, and low health literacy. Across Michigan, preventable ER visits strain providers and delay care for true emergencies. This project explores how community-informed, multilingual education empowers families to make confident healthcare decisions, reduces non-emergent pediatric visits, and strengthens the... Read More
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Henry Ford Hospital Patient & Family Advisory Council: Participants for Positive Change
Barbara Kuszak and Erika Schmeck
The Patient & Family Advisory Council (PFAC) has established itself as a key voice that Executive and Leadership teams turn to when implementing process improvements and launching new initiatives at Henry Ford Hospital. Our goal is to ensure the voices of patients and families are embedded in decision-making processes across departments and service lines in addition to promoting equity and inclusion by representing diverse perspectives and lived experiences.
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West Bloomfield Care Experience Patient and Family Advisory Council
Jennifer L. Manciel and Hannah M. Leinonen
Henry Ford Health West Bloomfield is committed to providing the highest standard of safe, compassionate, and comprehensive healthcare. The Patient and Family Advisory Council (PFAC) ensures that the voices of patients and families are integrated into improvement efforts and key priorities across our campus.
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Patient Involvement and Communication Council
Angela Murphy, Laura M. Gooseberry, Becca Austin, and Lara Miskevich
Patient-centered care is the best approach to improve patient health outcomes and make sure every patient feels valued. The Patient Advisory Council members are involved in the following: Act as Champions of the ideal patient experience by bringing their ideas, thoughts, and opinions on various topics and processes; Provide direction to staff to ensure there is patient engagement in health care services; Provide opinions to fill in communication gaps... Read More
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Patient Advisors in Research
Christine Neslund-Dudas, Nestelynn Gay, Jordan M. Braciszewski, Sara Santarossa, and Amy M. Loree
This poster celebrates the Patient Advisors who contribute to research projects across the health system. As integral members of research teams, Patient Advisors provide valuable feedback on study processes and serve as the patient voice to ensure that Henry Ford Health research is conducted with the highest standards of quality and equity.
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Bridging the Digital Divide by Improving Virtual Care Access for Older Adults
Thor Person, Alexandra Hunter, Andrew Bossick, Ujala Janjua, and Denise White-Perkins
Bridging the Telehealth Divide: While telehealth use surged during the COVID-19 pandemic, engagement among adults aged 65 and older has remained disproportionately low. HFH experienced a more than 1,500% rise in virtual care interactions between patient and providers between 2019 and 2020 (1). Although virtual care usage has declined nationally (1), HFH continues to maintain levels well above those seen before 2020. Nationally, patients aged 65 and older, as... Read More
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Co-Development and Co-Validation of the Patient Engagement in Research Scale Enhanced by Inclusion, Diversity, Equity, Acceptance and Safety
Ashley B. Redding, Chi Chang, Carl P. Wilson, Leah M. Copeland, Dana Murphy, and Sara Santarossa
Purpose: The PEIR-IDEAS project aimed to adapt and validate the Patient Engagement in Research Scale (PEIRS) in a diverse population of patients, centering inclusion, diversity, equity, acceptance, and safety (IDEAS). The Science of EngAgement Team (SEAT), which was comprised of diverse patient partners, researchers, and community members, were deeply embedded in every phase of the research process. Sample: Both active and inactive Patient Advisors from Henry Ford Health's Patient... Read More
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Centering Equity in the Science of Engagement: Best Practices from the PEIR-IDEAS Co-Leadership Model
Ashley B. Redding, Leah Copeland, Dana Murphy, and Sara Santarossa
The Patient Engaged Research Center at Henry Ford Health created the Science of EngAgement Team (SEAT), a diverse group of patient partners, researchers, and community members, who were involved throughout the project. The SEAT worked to improve a scale (the Patient Engagement in Research Scale; PEIRS) that measures how well patients are included and valued in resaerch, making sure it accurately measures engagement from patients of all backgrounds. Through... Read More
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Committees
Amy Sayles, Hesham Shaban, Emily Hurst, Amanda Renard, John Chandler, Tammy Neil, Jean Kokochak, Angela Murphy, Shiny Isaac, Bonnie Calcaterra, Sara Santarossa, Robyn McDermaid, Corey D. Parrett, Sue Piatak, Megan Brady, and Amy M. Loree
This poster is a celebration of the Patient Advisors who serve on individual placements throughout the health system. Their contributions are complex, high-level, meaningful, and impactful to the way Henry Ford Health delivers care in all sectors and disciplines. We believe a Patient Advisor should serve on every committee in the health system, because anywhere where healthcare decisions are being made is a place for a patient perspective.
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Special Projects
Caitlin Tatarcuk
This poster is a celebration of the Patient Advisors who serve on special projects. Their collaborations are multidisciplinary, with work on research teams within Public Health Sciences, advocacy on statewide initiatives and healthcare policy, or engagement to improve specific care service lines within Henry Ford Health.
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Implementability of a Perinatal Sleep Clinic
Amanda Yu, Mika Hirata, David A. Kalmbach, Philip Cheng, D'Angela S. Pitts, and Christopher Drake
Half of pregnant women develop insomnia, which increases depression, anxiety, suicidal thoughts, and preterm birth. ~10,0000 live births occur annually at Henry Ford Health (HFH). Although half of pregnant women develop insomnia, only 3% are diagnosed with insomnia disorder. Care access is limited as most health systems do not have clearly identified clinics where prenatal insomnia is managed. Sleep clinics do not often treat pregnant women. Perinatal mental health... Read More
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